AlstromUk: focused on establishing a clinical research environment to support both the clinical and associated research communities working in better understanding Alstrom Syndrome. A key aspect of this work was developing an infrastructure that supports wider outreach to the parents and guardians of Alstrom patients.

DSDnetwork: This proof of concept project developed a clinical framework to co-ordinate efforts into disorders of sex development across Australasia. This work included establishment of appropriate databases and secure portal based access to a range of clinical and genetic information on DSD patients. It leveraged much of the EuroDSD work.