European Society for Paediatric Endocrinology (ESPE) Disorder of Sex Development (DSD) Register: was a pilot study (20k€) that explored the creation of a secure internet based register and sharing of a uniform dataset across a group of paediatric endocrine centres across Europe. This proof of concept system was developed in 6 weeks and ultimately resulted in the galvanisation of the DSD community across Europe and the subsequent highly successful EuroDSD project.

Atypical Femur Fractures (AFF) is a clinical data registry that is used for capturing clinical and biomedical data on patients with atypical femur fractures – a rare condition that is often associated with medications that are taken that result in brittle bones. The PRESS team have developed the system and are responsible for the database, eCRFs and associated security demands of the community.