Disorders of Sex Development Network (DSDnet): this COST action focuses on the systematic elucidation of differences of sex development (DSD). It is building a network of all people interested in DSD, from leading scientists to clinicians, as well as people with DSD. Its aim is to obtain new knowledge on the biological pathways of sex development in humans, and to provide information on management for those physicians and psychologists caring for people with DSD. Furthermore, we want to provide a platform for all people with DSD, not only for those seeking medical advice, but also about peer support groups, as well as about the societal and cultural issues around DSD.

EuroRare Diabetes: An EU rare diseases registry for Wolfram, Alstrom and Bardet Biedl syndrome (EuroWABB): is a €1M project which began in 2011 to support European-wide research-oriented collaboration into a range of rare diabetes-related diseases – specifically Wolfram, Alstrom and Bardet Biedl. The work primarily focused upon collaborative networking and data sharing for clinicians dealing with these patients and biomedical researchers wishing to better understand the genetics and molecular mechanisms underlying these diseases. This registry was originally established at the University of Glasgow, but has now been migrated to the University of Melbourne.