Australian Diabetes Data Network (ADDN) was funded ($2m) by the Juvenile Diabetes Research Foundation (JDRF) and the Australian Paediatric Endocrinology Group (APEG) in April 2013. The project established the first Australia-wide paediatric type-1 diabetes registry. This system includes data extracted from a range of major hospitals/diabetes centres across Australia. PRESS developed the registry and all of the software for processing and extracting the (heterogeneous) data from hospital systems.

An EU rare diseases registry for Niemann-Pick Disease type A, B and C (INPDR) is an international registry that supports research into the rare but typically fatal Niemann-Pick diseases (types A, B and C). Researchers currently use this system across the globe since it provides a critical mass of data on patients (typically children) with Niemann-Pick that hitherto did not exist. The registry including extensive phenotypic/clinical information including treatments, assessments and patient follow up, as well as targeted variant data resources incorporating the first global set of variants associated with Niemann-Pick disease. The system also supports patient self-registration and self-reporting and has resulted in a range of novel mobile applications (games) that can be used for data capture as an artefact of game playing, e.g. by using the accelerometer to measure balance whilst playing games requiring tilting/manipulation of the mobile phone.